After her son was diagnosed with Developmental Language Disorder (DLD), Genna White became a Speech and Language Therapist to help families like her own. In this blog, Genna reflects on what DLD is and what she’d like parents, healthcare workers, and others working with children to know.
Genna Whitehas published 1 posts
In 2012 my eldest son was diagnosed with Specific Language Impairment (SLI), now known as Developmental Language Disorder (DLD). At the time there was very little awareness about this condition and very little information available. I began researching and building a support network of peers and professionals for my son and me.In 2013 I set up a support group for parents and carers of pre school children with speech, language and communication needs (SLCN) that was shortlisted for a Shine A Light award from The Communication Trust in 2013/14.In the same year, I also set up a DLD Facebook group for people affected by or interested in a DLD diagnosis. The group now has over 2400 members from all over the world and has become a place for parents and carers to share support and a forum for students and professionals to share research, consensus, articles, reviews, and events.In 2019 I presented an original research proposal poster exploring the functional impact of DLD on family life at the Child Language Symposium.In 2021 I qualified as a speech and language therapist. I work in clinical practice with children and young people with communication difficulties.My personal experience and clinical knowledge provide me with a unique perspective that I use to help families like my own. I am passionate about supporting individuals to access help and information, while ensuring that their lived experience is recognised and informs our ongoing understanding. I hope to facilitate a reciprocal knowledge exchange between Cochrane UK and its consumers that enables the dissemination of Cochrane’s work to individuals who will benefit from it directly, and supports their meaningful contribution to Cochrane’s work.