In this blog for informal cancer caregivers, Beverley Lim Høeg and Pernille Envold Bidstrup, who are both psychologists and cancer researchers, look at the challenges faced by those caring for a loved-one with cancer and explore why informal caregivers deserve more support and focus in cancer treatment and research. Pernille is also the mother of a 9 year old cancer survivor.
Patient & Public Involvement
Caroline Whiting reflects on the milestone of 100 completed Priority Setting Partnerships and the importance of this work with patients, carers and clinicians for making research relevant and useful.
Emma Doble and Marta Santos introduce the Cochrane UK Consumer Champions initiative and invite applications
Karen Morley blogs and draws her experiences as a daunted and delighted volunteer peer reviewer for Cochrane Common Mental Disorders.
Here's a taste of a workshop exploring meaningful consumer engagement in Cochrane, from Cochrane UK and Cochrane Ireland's 2019 symposium.
André Tomlin (@Mental_Elf), from the Beyond The Room team at the 2018 Cochrane Colloquium,#CochraneForAll, in Edinburgh interviews Dr Margaret McCartney (@mgtmccartney), general practitioner, about the practice of evidence-based medicine, relationships and trust.
André Tomlin from The Beyond The Room Team at the 2018 Cochrane Colloquium interviews Mark Taylor, Head of Impact for the Central Commissioning Facility of the National Institute for Health Research, about research impact, his own experience of multiple sclerosis and how Cochrane can involve patients in their work.
Transcript of a podcast interview conducted by André Tomlin with Therese Kristine Dalsbø and Marita Sporstol Fønhus, two Norwegian Cochrane review authors, who talk about their recent systematic review, “Patient-mediated interventions to improve professional practice”. Recorded at the Cochrane Colloquium, 2018
Transcript of a podcast interview with Dr Ruth Elwood Martin and Mo Korchinski about their work in Canada with women in prison: Arresting Hope – Women Taking Action in Prison Health Inside Out, conducted by André Tomlin @Mental_Elf. Recorded at the the Cochrane Colloquium 2018.
This is a transcript of a podcast interview with Erin Walker and Katrina Brooks conducted by Douglas Badenoch about involving young people in a meta-synthesis. Recorded at the Cochrane Colloquium 2018.
Casey Quinlan from Beyond The Room Team at the #CochraneForAll Colloquium, 2018, interviews Lyubov Lytvyn, a PhD student at McMaster University, about involving patients in research to guide the development of evidence-based recommendations.
Cochrane UK’s Sarah Chapman and Selena Ryan-Vig took the recent Cochrane Colloquium 'Beyond The Room', as part of a team of eight. With insights from their intrepid team mates, they consider what this extended social media activity achieved, what they would do another time and why, as Sally Crowe said, they “might be a little bit addicted to it”!