A blog about activities for people with dementia, drawing on evidence and experience.
Patient Experience
Informal caregivers: the invisible people caring for cancer survivors
In this blog for informal cancer caregivers, Beverley Lim Høeg and Pernille Envold Bidstrup, who are both psychologists and cancer researchers, look at the challenges faced by those caring for a loved-one with cancer and explore why informal caregivers deserve more support and focus in cancer treatment and research. Pernille is also the mother of a 9 year old cancer survivor.
Communicating about cancer: experiences and reflections
We invited people to share their experiences and views on communicating about cancer on Twitter. In this blog, Sarah Chapman reflects on what emerged.
Cancer and Post-Traumatic Stress
Sally Crowe reflects on her experiences of post-traumatic stress (PTS) after being diagnosed and treated for a rare cancer - a common, but little talked about outcome of having cancer.
Communication with cancer patients: does practice make perfect?
Charlotte Squires reflects on the importance of communication skills for healthcare professionals working with people who have cancer, from her perspective both as doctor and a patient with advanced Hodgkin Lymphoma.
Does communication skills training improve cancer care?
Liz O’Riordan reflects on the Cochrane Review 'Communication skills training for healthcare professionals working with people who have cancer' from her perspective as both breast surgeon and someone with recurrent breast cancer.
Contemplating Cancer: a special series from Cochrane UK
Introducing 'Contemplating Cancer', Cochrane UK's special series of blogs and other resources sharing cancer evidence and experience.
Cochrane UK Consumer Champions: another step towards better patient and public involvement
Emma Doble and Marta Santos introduce the Cochrane UK Consumer Champions initiative and invite applications
Patients as Poets: patients’ and carers’ experiences of living with advanced illness
Qualitative researchers Marilyn Kendall and Scott Murray reflect on the importance of patients' and carers' illness accounts for getting to the heart of what matters to people and share some ‘found’ poems that have emerged from their stories.
Pregnancy after stillbirth: experience and evidence gaps
Susannah Hopkins Leisher shares her experience of the trauma of stillbirth and impact on subsequent pregnancies and, with researcher Aleena Wojcieszek, looks at gaps in the evidence on how to care for such women and their families.
Recurrent miscarriage and early pregnancy: learning from women’s experiences
Sarah Bailey blogs about learning from women's experiences of early pregnancy after recurrent miscarriage to develop better support services.
Carer at the end of the line: evidence and experience of telephone support
Karen Morley reflects on her experiences as an informal carer and on Cochrane evidence for ways of supporting carers