Helen Bulbeck

Helen Bulbeck

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Helen has experienced cancer from a carer and patient perspective. This 360 degree view means that she is well placed to understand the perspectives of patients, carers and health care professionals. Her roles in brainstrust, a national brain cancer charity which she founded, and as a Cochrane consumer are as a disseminator of information and the provision of a network and community, so that she can provide advice on achieving effective consumer involvement and creating a voice. Helen’s key drivers are the patients, their carers and healthcare professionals, with whom she interacts daily. Her ethos of 'none of us is as smart as all of us' is a core value for her. Elemental to Helen’s work is high performance coaching and shared decision making. When we are no longer to able to change a situation we are challenged to change ourselves. The coaching relationship enables us to face these challenges, so that we learn how to develop resilience and utilise resources, becoming true co-pilots in our care.

Author Archives: Helen Bulbeck

Diagnosing and treating brain tumours: reflections on the latest Cochrane evidence

In this blog for people living with a brain tumour, healthcare practitioners and anyone with an interest in brain tumours, Helen Bulbeck, Cochrane consumer representative and director of policy and services for brainstrust, looks at the latest Cochrane evidence on brain tumours and reflects on what this special collection means for the brain tumour community and why collaboration has been key to the success of this work.