Peter Buckle, a patient advocate whose wife died of glioblastoma, and Professor Scott Murray, GP and palliative care innovator, call for honest communication between health professionals and people with glioblastoma and their families, enabling shared decision-making and planning, with a focus on quality of life. They give sources of information and support for patients and families, and practical suggestions for clinicians.
Peter Bucklehas published 1 posts
Patient Advocate Volunteer: My wife Wendy, at the age of 54, died from a glioblastoma after an illness of less than six months. Apart from hospital in-patient stays following the original debulking surgery, and later for pneumonia, I cared for her in our home until her death. Since then, and after my early retirement from paid employment, I have campaigned for: • Better brain tumour treatments • Honesty in communication of prognosis for terminal diseases • Informed choice of treatment for cancer patients • Improved access to psychological support for terminally ill patients • Improved end of life care for terminally ill patients I am currently involved as a Patient Advocate in fourteen research projects, both clinical trials and qualitative studies, and also with twelve local and national bodies involved in improving delivery of neuro-oncology services, cancer and end of life care. I have also contributed to many media and influencing events, including live and recorded national and regional television, radio and newspaper interviews and All-Party Parliamentary Group meetings.