In the first part of a two-part blog for our special series on living with long-term conditions, Ceri Dare, Brian Devlin, Olivia Fulton and Genna White, the four Cochrane UK Consumer Champions, and Emma Doble, Cochrane UK’s Patient and Consumer Co-ordinator, reflect on the daily burden of work that comes with living with a long-term condition, how they’ve managed during the pandemic, and sources of information and support they find useful.