In this blog, Olivia shares her story about her son Max’s experience of Bell’s palsy and Sarah Chapman looks at the evidence on treatments.
Page originally published 17 July 2015. Revised and republished 16 August 2022 with the addition of NICE guidance and take-home points.
Imagine how frightening it would be to wake up one day, unable to move one side of your face. This is generally how Bell’s palsy announces itself, without warning. It can begin suddenly but worsen over 48 hours. Bell’s palsy affects about one in 60 people aged 15 to 40, with an even split between the sexes. It’s not certain what causes it and there are also uncertainties about how best to treat it.
Corticosteroids may be prescribed, to reduce inflammation and limit nerve damage. A viral cause has been suggested so antiviral drugs may be used to treat it and there are other options too. Even without treatmentSomething done with the aim of improving health or relieving suffering. For example, medicines, surgery, psychological and physical therapies, diet and exercise changes., the paralysis is usually temporary, but recovery can take weeks or months and about one in five people are left with some permanent disfigurement or pain.
Before I look at the evidence for treatment options, here is what happened to 13 year old Max, as told by his Mum, Olivia:
“It was mid-morning when Max came downstairs and into the kitchen. I asked him how he was feeling without looking up from my marking until he said “my face feels funny”. When I looked up one side was obviously not right. It’s difficult to describe, it wasn’t droopy or loose, no rash or redness, but just didn’t look right. I asked him if he had pins and needles and he said he couldn’t feel it and he couldn’t open his mouth properly.
Watching him speak, my blood ran cold, only one side of his mouth moved and the frown seemed to fade away in the middle of his forehead. They say a little knowledge is a dangerous thing and as a nurse, my first thought was a stroke, but he was standing and touching his face with his hand.
My next thought was neurological damage, and it took all my strength to keep a calm-looking face as I asked him to sit down while I called the GP. “I’ve probably just slept on it funny” he said, but as he tried to take a drink and it fell out of one side of his mouth, he looked a bit worried and suddenly a lot younger.
GP receptionists sometimes get bad press, but the one I spoke to was great. She listened to me and said a doctor would call me right back. The doctor asked me a lot of questions but decided he needed to see him quickly and we were in within about 45 minutes, but it felt like ages. I kept smiling at my son in the car and waiting room and it was horrible to see only a half-smile back.
Working with uncertainty
GP did a thorough examination and said he thought it was Bell’s palsy and explained that the prognosis was usually good in young people but he wasn’t sure how, or if, to treat it. He asked us to wait in the waiting room while he spoke to a specialist at the local hospital and I had to resist the temptation to ‘google’ it while we waited.
When we went back in, the GP explained that there was no definitive treatment and that opinion was mixed about whether medication to reduce the inflammation was worth using. He told us it was a logical option although there was no evidence that it either hastened recovery or prevented further deterioration.
However, Max had had surgery on a broken arm five days earlier and the GP was concerned that it may compromise recovery so advised us to call the orthopaedic consultant before starting the tablets. While he tried to reassure me that there was plenty of evidence of recovery without any treatment in young people, I was very uncomfortable with ‘doing nothing’.
He also explained to us that it was “highly likely” that there would be a full recovery, but he couldn’t say how long it would take… his best guess (when pushed) was between three weeks and six to nine months. Despite working with people with learning disabilities for most of my career, I am not a patient person and my son looked equally anxious about his uncertainty.
Going into school took courage…
After speaking to the consultant and being reassured that it should not do any harm, we decided to start the medication, prednisolone, which is a corticosteroid. Max was reluctant to go back to school – he already stood out a bit because of the cast on his arm and he really didn’t look like himself if you could see the affected side of his face. Because we didn’t know how long it would last he really couldn’t miss school and I am incredibly proud of the courage he showed going in every day.
As well as looking different and having to have eye drops and wear a patch at night, he was reluctant to talk and eating and drinking was difficult. We got drinks with straws and helped him learn how to position it so that he didn’t dribble but he didn’t eat anything at all at school during the time he had it and was (even more) restricted in what he did eat. We now did have a ‘typical teenager’ – grunting, reclusive, miserable-looking and living on cereal!!
It can be difficult to do nothing
After a couple of weeks, I happened to have a conversation at work about Max and one of my colleagues told me that she had heard that chewing gum could speed up recovery by strengthening the facial muscles. We were all keen to be doing something to help him feel better and see him smile and look like himself again, so mega-packs were bought. One evening about halfway through his third week, he laughed at something and I was sure the affected side of his face moved a bit. After that, I drove him mad trying to get him to smile and frown and within a week, incredibly, he was back to normal.
This was nearly two years ago now and we don’t know whether he got better because of the medication, the chewing gum or whether he would have recovered in the same time without either. What it has taught me though, is how difficult it can be to ‘do nothing’.”
What evidence do we have to guide treatment?
Antivirals and corticosteroids
A variety of treatments may be tried for Bell’s palsy but, as Olivia’s account shows, doctors and patients are having to work with a lot of uncertainty. The Cochrane Review Antiviral treatment for Bell’s palsy most recently updated in September 2019, found that:
- antivirals and corticosteroids combined may have little or no effect on rates of incomplete recovery compared to corticosteroids alone
- the combined treatment probably reduced the number of people left with long-term effects of Bell’s palsy compared with corticosteroids alone
- there is continued uncertainty about possible harms
The Cochrane Review Corticosteroids for Bell’s palsy (published July 2016) found that:
- compared with placeboAn intervention that appears to be the same as that which is being assessed but does not have the active component. For example, a placebo could be a tablet made of sugar, compared with a tablet containing a medicine. (dummy medicine), treatment with corticosteroids reduced the number of people who did not recover completely from Bell’s palsy. Ten people would need to be treated with corticosteroids to avoid one person not recovering completely.
- the number of people experiencing side effects was probably similar with corticosteroids or placebo.
The NHS website says that treatment with prednisolone [a corticosteroid] should begin within 3 days (72 hours) of the symptoms starting.
It has been suggested that surgery to free the facial nerve might improve recovery, but there authors of the Cochrane Review Surgical interventions for the early management of Bell’s palsy (January 2021) found there was insufficient evidence “to decide whether surgical interventionA treatment, procedure or programme of health care that has the potential to change the course of events of a healthcare condition. Examples include a drug, surgery, exercise or counselling. is beneficial or harmful”. They also say that “there is unlikely to be further research into the role of an operation because Bell’s palsy usually recovers without treatment.”
Guidance on Bell’s palsy from the National Institute for Health and Care Excellence (NICE)
The NICE guideline Suspected neurological conditions: recognition and referral (July 2019) is about recognizing the condition and when to refer (if at all) for specialist treatment. The committee agreed that:
- uncomplicated Bell’s palsy can be diagnosed and managed in primary care
- it is important that people with this condition know that recovery time can vary and that recovery might not be complete
- referral for specialist treatment can be beneficial for people who develop troublesome symptoms after recovering from Bell’s palsy
The guideline contains the following recommendations:
1.7.11 Do not routinely refer adults with an uncomplicated episode of Bell’s palsy (unilateral lower motor neurone pattern facial weakness affecting all parts of the face and including weakness of eye closure) and no evidence of another medical condition such as middle ear disease.
1.7.12 Advise adults with Bell’s palsy about eye care, and explain that Bell’s palsy improves at different rates and maximum recovery can take several months.
1.7.13 Consider referring adults with Bell’s palsy who have developed symptoms of aberrant reinnervation (including gustatory sweating or jaw-winking) 5 months or more after the onset of Bell’s palsy for neurological assessment and possible treatment. (p15).
NICE has also published a Clinical Knowledge Summary: Bell’s palsy (May 2019), which has been informed by Cochrane evidenceCochrane Reviews are systematic reviews. In systematic reviews we search for and summarize studies that answer a specific research question (e.g. is paracetamol effective and safe for treating back pain?). The studies are identified, assessed, and summarized by using a systematic and predefined approach. They inform recommendations for healthcare and research..
Facing up to Bell’s palsy
Olivia has shown that living with Bell’s palsy even for a short time can make everyday life very difficult and she’s right to be proud of Max for going to school when half his face didn’t work properly.
There’s a surprising lack of awareness of a condition that affects so many, something that BBC correspondent John Sudworth worked to change when he carried on broadcasting during a long period of recovery from it. For fashion student Julia Wollner, her two years of living with Bell’s palsy was a major influence on her designs, creating abstract prints from photos of her face before and after she got Bell’s palsy, making shapes that were ‘slightly uncomfortable’ and using large line drawings of faces, taken from the facial exercises she did. Most recently, playwright Sarah Ruhl has written a book, Smile: The Story of a Face (published by Vintage, 20 January 2022) about developing Bell’s palsy after giving birth to her twins, and still learning to live with it, eleven years on.
Join in the conversation on Twitter with @CochraneUK @SarahChapman30 or leave a comment on the blog.
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You can also find more useful resources and stories from the charity Facial Palsy UK – https://www.facialpalsy.org.uk/
can i ask if anyone suffered severe headaches im on my second bout of bell’s palsy and this time it’s more severe
With an NNT of 9 for steroids, why wasn’t he offered them? Only 50% of eligible patients are offered steroids for Bell’s palsy … See