Karen Morley reflects on her experience of becoming a consumer author on a Cochrane Review, using her lived experience of Obsessive Compulsive Disorder (OCD) and considers the questions it raised for her about Public Involvement in research.
Tag: patient experience
Glioblastoma: honest conversations for shared decision-making
Peter Buckle, a patient advocate whose wife died of glioblastoma, and Professor Scott Murray, GP and palliative care innovator, call for honest communication between health professionals and people with glioblastoma and their families, enabling shared decision-making and planning, with a focus on quality of life. They give sources of information and support for patients and families, and practical suggestions for clinicians.
Language matters: the use and misuse of language when talking about long-term conditions
This blog summarises a conversation hosted on Twitter by Cochrane UK, inviting views on the use and misuse of language when talking about long-term conditions.
Contemplating pregnancy with long-term health conditions
In this blog, written for women, health professionals, policy makers and commissioners, Rachel Plachcinski and Ngawai Moss discuss the lack of evidence for planning pregnancy and maternity care for women with two or more long term health conditions. They explore women’s experiences through their pregnancy journeys: identifying challenges and gaps in understanding, plus what matters to women during pregnancy when living with long term health conditions.
Living with long-term conditions: a Cochrane UK special series
Throughout June, we are shining a spotlight on living with long-term conditions, sharing blogs that include relevant evidence and personal reflections. The series will also include a discussion on Twitter about the impact language can have on people with long-term conditions.
Experiencing Evidently Cochrane blogs: uncertainty, suffering and solidarity
Recently, Cochrane UK undertook some qualitative work to explore what the comments posted on Evidently Cochrane blogs might tell us about what readers get from our blogs. In this blog, the Editors of Evidently Cochrane, Sarah Chapman and Selena Ryan-Vig, and qualitative researcher Fran Toye, talk about the methods they used, the insights they gained, and the subsequent changes made to the blogs to make them more useful to readers.
Activities for people with dementia: what can evidence and experience teach us?
A blog about activities for people with dementia, drawing on evidence and experience.
Cancer and Post-Traumatic Stress
Sally Crowe reflects on her experiences of post-traumatic stress (PTS) after being diagnosed and treated for a rare cancer - a common, but little talked about outcome of having cancer.
Communication with cancer patients: does practice make perfect?
Charlotte Squires reflects on the importance of communication skills for healthcare professionals working with people who have cancer, from her perspective both as doctor and a patient with advanced Hodgkin Lymphoma.
Does communication skills training improve cancer care?
Liz O’Riordan reflects on the Cochrane Review 'Communication skills training for healthcare professionals working with people who have cancer' from her perspective as both breast surgeon and someone with recurrent breast cancer.
Contemplating Cancer: a special series from Cochrane UK
Introducing 'Contemplating Cancer', Cochrane UK's special series of blogs and other resources sharing cancer evidence and experience.
Patients as Poets: patients’ and carers’ experiences of living with advanced illness
Qualitative researchers Marilyn Kendall and Scott Murray reflect on the importance of patients' and carers' illness accounts for getting to the heart of what matters to people and share some ‘found’ poems that have emerged from their stories.