Tag: patient experience

Menière’s disease: experience, evidence gaps & treatment choices

In a blog for people with Menière's disease and those supporting them, Sarah Chapman looks at the latest evidence on treatments and talks to her husband Tim about living with Menière’s and making choices about treatments, and to researcher Katie Webster and Ear, Nose and Throat doctor Martin Burton, who are both authors of new Cochrane Reviews on treatments for Menière's.

Glioblastoma: honest conversations for shared decision-making

Peter Buckle, a patient advocate whose wife died of glioblastoma, and Professor Scott Murray, GP and palliative care innovator, call for honest communication between health professionals and people with glioblastoma and their families, enabling shared decision-making and planning, with a focus on quality of life. They give sources of information and support for patients and families, and practical suggestions for clinicians.     

Contemplating pregnancy with long-term health conditions

In this blog, written for women, health professionals, policy makers and commissioners, Rachel Plachcinski and Ngawai Moss discuss the lack of evidence for planning pregnancy and maternity care for women with two or more long term health conditions. They explore women’s experiences through their pregnancy journeys: identifying challenges and gaps in understanding, plus what matters to women during pregnancy when living with long term health conditions.