Tag Archives: patient experience

Glioblastoma: honest conversations for shared decision-making

Peter Buckle, a patient advocate whose wife died of glioblastoma, and Professor Scott Murray, GP and palliative care innovator, call for honest communication between health professionals and people with glioblastoma and their families, enabling shared decision-making and planning, with a focus on quality of life. They give sources of information and support for patients and families, and practical suggestions for clinicians.     

Contemplating pregnancy with long-term health conditions

In this blog, written for women, health professionals, policy makers and commissioners, Rachel Plachcinski and Ngawai Moss discuss the lack of evidence for planning pregnancy and maternity care for women with two or more long term health conditions. They explore women’s experiences through their pregnancy journeys: identifying challenges and gaps in understanding, plus what matters to women during pregnancy when living with long term health conditions.

Experiencing Evidently Cochrane blogs: uncertainty, suffering and solidarity

Recently, Cochrane UK undertook some qualitative work to explore what the comments posted on Evidently Cochrane blogs might tell us about what readers get from our blogs. In this blog, the Editors of Evidently Cochrane, Sarah Chapman and Selena Ryan-Vig, and qualitative researcher Fran Toye, talk about the methods they used, the insights they gained, and the subsequent changes made to the blogs to make them more useful to readers.

Cancer and Post-Traumatic Stress

Sally Crowe reflects on her experiences of post-traumatic stress (PTS) after being diagnosed and treated for a rare cancer - a common, but little talked about outcome of having cancer.

Does communication skills training improve cancer care?

Liz O’Riordan reflects on the Cochrane Review 'Communication skills training for healthcare professionals working with people who have cancer' from her perspective as both breast surgeon and someone with recurrent breast cancer.