A doctor and a stroke survivor reflect on the Cochrane evidence about giving people information after stroke and on their own experiences.
Tag: patient experience
Making health decisions: things that can help
In a blog for anyone making health decisions, Sarah Chapman looks at some key things that can help you make a choice that feels right for you. Included here are links to good resources.
Evidence for Maternity Care: new evidence and resources – September 2022
The latest evidence and resources for midwives and clinical support staff.
Evidence for Nursing: new evidence and resources – September 2022
The latest evidence and resources for nurses and clinical support staff.
Bell’s palsy: facing up to uncertainty
What would you do if you woke up unable to move half your face? This blog shares Olivia's story, the challenges of Bell's palsy & what we know about treatments
My OCD journey 2: learning and compassion in tough times
In this blog, Karen Morley, who in 2018 wrote for Evidently Cochrane about her experiences of OCD (obsessive compulsive disorder) and how evidence helped her, tells us what has happened since, including the impact of the COVID-19 pandemic on her mental health, the challenges, and things she has found empowering.
Becoming a Cochrane Review author: trust me, I’m a patient!
Karen Morley reflects on her experience of becoming a consumer author on a Cochrane Review, using her lived experience of Obsessive Compulsive Disorder (OCD) and considers the questions it raised for her about Public Involvement in research.
Glioblastoma: honest conversations for shared decision-making
Peter Buckle, a patient advocate whose wife died of glioblastoma, and Professor Scott Murray, GP and palliative care innovator, call for honest communication between health professionals and people with glioblastoma and their families, enabling shared decision-making and planning, with a focus on quality of life. They give sources of information and support for patients and families, and practical suggestions for clinicians.
Language matters: the use and misuse of language when talking about long-term conditions
This blog summarises a conversation hosted on Twitter by Cochrane UK, inviting views on the use and misuse of language when talking about long-term conditions.
Contemplating pregnancy with long-term health conditions
In this blog, written for women, health professionals, policy makers and commissioners, Rachel Plachcinski and Ngawai Moss discuss the lack of evidence for planning pregnancy and maternity care for women with two or more long term health conditions. They explore women’s experiences through their pregnancy journeys: identifying challenges and gaps in understanding, plus what matters to women during pregnancy when living with long term health conditions.
Living with long-term conditions: a Cochrane UK special series
Throughout June, we are shining a spotlight on living with long-term conditions, sharing blogs that include relevant evidence and personal reflections. The series will also include a discussion on Twitter about the impact language can have on people with long-term conditions.
Experiencing Evidently Cochrane blogs: uncertainty, suffering and solidarity
Recently, Cochrane UK undertook some qualitative work to explore what the comments posted on Evidently Cochrane blogs might tell us about what readers get from our blogs. In this blog, the Editors of Evidently Cochrane, Sarah Chapman and Selena Ryan-Vig, and qualitative researcher Fran Toye, talk about the methods they used, the insights they gained, and the subsequent changes made to the blogs to make them more useful to readers.