Dr Adele Horobin, Patient and Public Involvement and Engagement Manager at the Nottingham Biomedical Research Centre discusses COACH, a new clinical trial aiming to find out if hearing aids or a cochlear implant is better for adults with severe hearing loss
This blog summarises a conversation hosted on Twitter by Cochrane UK, inviting views on the use and misuse of language when talking about long-term conditions.
In this blog for people with severe arthritis Robert Walton, Senior Fellow in General Practice at Cochrane UK and a very general practitioner, examines Cochrane evidence about biologics, a new generation of drugs to help people with this disabling long term condition.
In this blog for anyone affected by, or interested in, long-term conditions, Anne Cooper, a person with Type 1 Diabetes, Bob Swindell, a person with Type 2 Diabetes, and Cathy Lloyd, Professor of Health Studies at the Open University, explore the impact language can have on people who live with a long-term condition, including helpful tips for healthcare professionals for choosing helpful and appropriate language.
In the second part of a two-part blog for our special series on living with long-term conditions, Brian Devlin, Ceri Dare, Genna White and Olivia Fulton, the four Cochrane UK Consumer Champions, and Emma Doble, Cochrane UK’s Patient and Consumer Coordinator, reflect on making treatment decisions, what they want healthcare professionals to know, and what they would tell their younger selves.
In the first part of a two-part blog for our special series on living with long-term conditions, Ceri Dare, Brian Devlin, Olivia Fulton and Genna White, the four Cochrane UK Consumer Champions, and Emma Doble, Cochrane UK’s Patient and Consumer Co-ordinator, reflect on the daily burden of work that comes with living with a long-term condition, how they’ve managed during the pandemic, and sources of information and support they find useful.
Emma Doble, who lives with Type 1 Diabetes and gave birth for the first time in 2020, reflects on her pregnancy journey, highlighting the importance of technology and shared decisions-making, and calling for better postnatal care for women with diabetes.
In this blog, written for women, health professionals, policy makers and commissioners, Rachel Plachcinski and Ngawai Moss discuss the lack of evidence for planning pregnancy and maternity care for women with two or more long term health conditions. They explore women’s experiences through their pregnancy journeys: identifying challenges and gaps in understanding, plus what matters to women during pregnancy when living with long term health conditions.
In this blog for patients and doctors, Dr Mark Horowitz, training psychiatrist and Clinical Research Fellow at University College London, looks at the latest Cochrane evidence on how to safely stop antidepressants and explores the implications for patients and doctors having to navigate this area so neglected by medical researchers. Mark’s personal experience of the difficulty in coming off antidepressants led to an interest in the little-understood field of stopping psychiatric medication, and the balance of harms and benefits.
Throughout June, we are shining a spotlight on living with long-term conditions, sharing blogs that include relevant evidence and personal reflections. The series will also include a discussion on Twitter about the impact language can have on people with long-term conditions.