Dr Adele Horobin, Patient and Public Involvement and Engagement Manager at the Nottingham Biomedical Research Centre discusses COACH, a new clinical trial aiming to find out if hearing aids or a cochlear implant is better for adults with severe hearing loss
Contemplating pregnancy with long-term health conditions
In this blog, written for women, health professionals, policy makers and commissioners, Rachel Plachcinski and Ngawai Moss discuss the lack of evidence for planning pregnancy and maternity care for women with two or more long term health conditions. They explore women’s experiences through their pregnancy journeys: identifying challenges and gaps in understanding, plus what matters to women during pregnancy when living with long term health conditions.
Taking part in randomised trials: what influences people’s decision to participate?
Cathering Houghton blogs about what influences people's decisions to take part in randomised trials.
Informal caregivers: the invisible people caring for cancer survivors
In this blog for informal cancer caregivers, Beverley Lim Høeg and Pernille Envold Bidstrup, who are both psychologists and cancer researchers, look at the challenges faced by those caring for a loved-one with cancer and explore why informal caregivers deserve more support and focus in cancer treatment and research. Pernille is also the mother of a 9 year old cancer survivor.
Cochrane UK Consumer Champions: another step towards better patient and public involvement
Emma Doble and Marta Santos introduce the Cochrane UK Consumer Champions initiative and invite applications
The People’s Trial: your chance to be a scientist in a fun online trial
Want to be part of a bold new project, a public-led fun online clinical trial? Here it is - The People's Trial.
Making meaningful consumer involvement a reality
Here's a taste of a workshop exploring meaningful consumer engagement in Cochrane, from Cochrane UK and Cochrane Ireland's 2019 symposium.
Arresting Hope: #CochraneForAll interview with Ruth Ellwood Martin and Mo Korchinski
Transcript of a podcast interview with Dr Ruth Elwood Martin and Mo Korchinski about their work in Canada with women in prison: Arresting Hope – Women Taking Action in Prison Health Inside Out, conducted by André Tomlin @Mental_Elf. Recorded at the the Cochrane Colloquium 2018.
Involving patients in developing guidelines: #CochraneForAll interview with Lyubov Lytvyn
Casey Quinlan from Beyond The Room Team at the #CochraneForAll Colloquium, 2018, interviews Lyubov Lytvyn, a PhD student at McMaster University, about involving patients in research to guide the development of evidence-based recommendations.
#CochraneForAll interview with Emma Cartwright and Jess Rees, the Rosamund Snow Prize recipients
Podcast and transcript: Emma Cartwright and Jess Rees, Cochrane UK’s Rosamund Snow Prize recipients, interviewed firstly by Sally Crowe and then by André Tomlin, members of the #BeyondTheRoom team at #CochraneForAll.
From trickle down evidence based medicine to evidence-based medicine: #CochraneForAll interview with Victor Montori
This is a transcript of a podcast interview with Professor Victor Montori @vmontori conducted by Casey Quinlan @MightyCasey. Recorded at the Cochrane Colloquium 2018 .
From #PatientsIncluded to Patient in 12 hours – my #BeyondTheRoom experience at the Cochrane Colloquium, 2018
Sally Crowe reflects on participating in our recent conference, the Cochrane Colloquium, as a member of the #BeyondTheRoom team.