Tag: patient and public involvement

Stroke: evidence, experience and resources

On this page, you can find our blogs about different aspects of stroke. Many of them include research evidence and also reflections from people affected by stroke themselves, health professionals involved in the care of people with stroke and stroke researchers. There are also links to helpful resources.

Stroke survivors: measuring what is important in speech recovery

Stephen Taylor, Joe Bugler, and Annette Dancer are three stroke survivors affected by dysarthria (unclear speech). They are also members of HEARD (Healing, Empowered And Recovering from Dysarthria), a patient involvement group which has helped to shape research to identify the things that matter most in speech recovery after stroke. In this blog, they tell us more.

Contemplating pregnancy with long-term health conditions

In this blog, written for women, health professionals, policy makers and commissioners, Rachel Plachcinski and Ngawai Moss discuss the lack of evidence for planning pregnancy and maternity care for women with two or more long term health conditions. They explore women’s experiences through their pregnancy journeys: identifying challenges and gaps in understanding, plus what matters to women during pregnancy when living with long term health conditions.

Informal caregivers: the invisible people caring for cancer survivors

In this blog for informal cancer caregivers, Beverley Lim Høeg and Pernille Envold Bidstrup, who are both psychologists and cancer researchers, look at the challenges faced by those caring for a loved-one with cancer and explore why informal caregivers deserve more support and focus in cancer treatment and research. Pernille is also the mother of a 9 year old cancer survivor.