On this page, you can find our blogs about different aspects of stroke. Many of them include research evidence and also reflections from people affected by stroke themselves, health professionals involved in the care of people with stroke and stroke researchers. There are also links to helpful resources.
Tag: patient and public involvement
Stephen Taylor, Joe Bugler, and Annette Dancer are three stroke survivors affected by dysarthria (unclear speech). They are also members of HEARD (Healing, Empowered And Recovering from Dysarthria), a patient involvement group which has helped to shape research to identify the things that matter most in speech recovery after stroke. In this blog, they tell us more.
Karen Morley reflects on her experience of becoming a consumer author on a Cochrane Review, using her lived experience of Obsessive Compulsive Disorder (OCD) and considers the questions it raised for her about Public Involvement in research.
Dr Adele Horobin, Patient and Public Involvement and Engagement Manager at the Nottingham Biomedical Research Centre discusses COACH, a new clinical trial aiming to find out if hearing aids or a cochlear implant is better for adults with severe hearing loss
In this blog, written for women, health professionals, policy makers and commissioners, Rachel Plachcinski and Ngawai Moss discuss the lack of evidence for planning pregnancy and maternity care for women with two or more long term health conditions. They explore women’s experiences through their pregnancy journeys: identifying challenges and gaps in understanding, plus what matters to women during pregnancy when living with long term health conditions.
Cathering Houghton blogs about what influences people's decisions to take part in randomised trials.
In this blog for informal cancer caregivers, Beverley Lim Høeg and Pernille Envold Bidstrup, who are both psychologists and cancer researchers, look at the challenges faced by those caring for a loved-one with cancer and explore why informal caregivers deserve more support and focus in cancer treatment and research. Pernille is also the mother of a 9 year old cancer survivor.
Want to be part of a bold new project, a public-led fun online clinical trial? Here it is - The People's Trial.
Transcript of a podcast interview with Dr Ruth Elwood Martin and Mo Korchinski about their work in Canada with women in prison: Arresting Hope – Women Taking Action in Prison Health Inside Out, conducted by André Tomlin @Mental_Elf. Recorded at the the Cochrane Colloquium 2018.
Casey Quinlan from Beyond The Room Team at the #CochraneForAll Colloquium, 2018, interviews Lyubov Lytvyn, a PhD student at McMaster University, about involving patients in research to guide the development of evidence-based recommendations.
Podcast and transcript: Emma Cartwright and Jess Rees, Cochrane UK’s Rosamund Snow Prize recipients, interviewed firstly by Sally Crowe and then by André Tomlin, members of the #BeyondTheRoom team at #CochraneForAll.
This is a transcript of a podcast interview with Professor Victor Montori @vmontori conducted by Casey Quinlan @MightyCasey. Recorded at the Cochrane Colloquium 2018 .